Wednesday, March 25, 2015

LOTD - Still living life

Hair: Exile - Give and Take
(@ Arcade - March 2015)
Eyes: Adoness - Havila {Amber}
Skin: Logo - Chloe {Bloom}
Dress: Wimey - La Vie En Rose {Tan}
(@ Kawaii Project)
Hands: Slink - AvEnhance Hands {Elegant & Gesture}
Nail Polish: Alaskametro - Beauty {Neutrals/Gold}
Feet: Slink - AvEnhance Feet {High}
Shoes: Eudora - Dahlia
(@ Love is in the Air - Feb 2015)
Pose: Aeon - 020

          I have told a few people recently but being the open book I am, I wanted to tell all of my friends, family and readers. February 13th 2015, I got it confirmed that I have Huntington's Disease. For those who don't know what that is, it is an incurable, degenerative, neurological disease. When symptoms start, the disease starts to mess with a person's ability to walk, eat, talk, think straight, and eventually the person with HD has to depend on others. There may not be a cure right now, there is no way to stop it, or slow it down, but there is research being done.

          I grew up with my Grandmother on my paternal side having it. (Doctor looked at symptoms and said she had it, no blood test was done.) So I knew from an early age that it was possible. At 15, in my biology class in high school I was able to write a paper about whatever I chose, as long as it was in the field of biology of course. My paper was on this, Huntington's Disease. So I have felt as prepared as I possibly could be. 13, almost 14 years later I was actually able to get the test completed to see if I carried it. I found out, after the test being confirmed, that nobody in my family got officially tested, so I got to surprise them with a family, genetic disease. Thought it was funny a bit.

          Because of the practice of reflection in the past I found it easy to be told that I was going to get HD. The doctor seemed to have a harder time telling me, than me hearing it. I also enjoy being open as much as I can about my life, and wanted people in my life to know what is going on during it. For me, it is similar to reflecting on choice I have made for my son, or how I want to be a greener person.  How can I be a better me, live a long, healthy life, be the best mum I can, and just in general be a good person.

          Don't be sad, and don't have pity, but take a look in the mirror. Reflect on yourself. Have you done something amazing lately? Be proud! That is fantastic! Done something you think could have been handled better? Think about the ways it could have been handled better and fix that for next time. Accept that it happened, and learn from it. Always wished you could have a trait or skill? Look at yourself in the eyes, and tell yourself that you are going to do it! 

How do you reflect? Is it usually positive, negative, or fairly even thought process? Do you work towards a better you? How do you manage it? Tell me in the comments below.

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